Thursday, May 7, 2009

The next couple of days

Day of surgery was a haze. Rohan covered in tubes, pretty much sleeping all day due to heavy morphine doses. He spent the night in the ICU. The next day (May 7th) we wnt back home - i mean the regular ward, but he is still pretty sleepy and tired and gets morphine every two hours. Nana and Siddu mama came to Atlanta. That night was crazy - he screamed and kicked and ripped out 2 IV sites, which luckily were not being used. The next morning the catheter came out. Yay! Rohan also had to take some baby steps and made it out of bed into a chair. Im sure it was painful, but he didnt complain. No food or drink yet, but he is starting to think about things to eat. May 8th the surgeon came by in the morning and said his nasal tube could come out. Yay yay yay. That was bugging him for a bit. Once out, Rohan was back to being chirpy. Still no food or drink, but he is happy its out!
May 9th - Jello, juice!!! Yummmmmmmm. No throw up so hes keeping it down quite well. ROhan is walking down the hall ways, and looks like he is ready to rip out his last IV and run!
May 10th - Happy MOthers day! Who would have thought that the best mothers day present would be a bowel movement!!!! Rohan is ready for food. Of course his fast was broken with the best food on the planet - Goldfish! (Thanks Jaya) followed by eggs, pancakes, milk etc etc. And he is holding it down fantastically!
May 11th - Yayayayay - we are going home. The last IV is out! No more Pole following Rohan. Discharged and came back home in the AM. Rohan is recovering very well from surgery and bouncing all over the place.
May 12th - Kumar thatha and Kamakshi paati land in Atl from Chennai. So much excitement! So many people. So many toys! What surgery??? Is something supposed to hurt????
May 13th - Docs confirm that he has stage III cancer -- not stage II as we were originally suspecting. Requires one additional chemo drug, and radiation :(((( We had chemo day 1 today, and ROhan got a dose of vincristine and dactinomycin via his port. He didnt cry at all, and was distracted by a book, or maybe it was Thomas. Did pretty well the rest of the day. Medicating at home is a PAIN and he spits out everything.

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